Well here I am doing my radio thing again but this time it's for RADIOPARKIES created by people with Parkinson's for People with Parkinson's and anybody else who likes listening to a good radio station and, believe me, Radioparkies is a very very good and well-established radio station. Rob Keene is 65 years old and has been living with Parkinson's for 47 years but I've never let the condition define me or my life because the day that happens I will dig a big hole and jump in. I've had a normal family life. I'm a writer, composer videomaker crown green bowler. I work very hard at the things I am able to do and very rarely get to bed before the early hours but that's just me Robert James Keene.
If I had to sum myself up in three words. The first word that immediately springs to mind is COMPLICATED which is not a simple word. And I say that because I have never been content with whatever I've been doing in my life and have always strived to do something even better. But that's the creativity in me which was restricted for long periods in my life by this thing called Parkinson's disease. But now at the ripe old age of sixty-five, it is definitely in full bloom. It has probably lain dormant in me for quite a few years but was pushed to the back of the queue by the manual workers in my brain cell department. But now as the manual cells have slowly but surely been made redundant the creative cells in my brain are taking a more positive approach to my life and thankfully reassuring me that I still have a purpose. My creative side is expanding all the time because apart from being a writer, I compose original music as well and make music videos and informative documentaries about Parkinson's disease. Another word to describe myself would be STUBBORN, and that one word is probably the one thing that has kept me going through having to live with PARKINSON'S for well over 47 years. I am probably one of the most stubborn people you will ever meet. I don't listen to anybody, I can be antagonistic, unpredictable, extrovert difficult to be around at times, lovable, annoying, I could go on but the point is that I have clarity of mind now after all these years of struggling with what we have always been told is a DISEASE and after years and years of anxiety and worry and despair and any other word that you could use to describe Parkinson's it suddenly stopped. And do you know why? I realised what Parkinson's was. It was me. The final word I use to describe myself is CREATIVE which is what I spend the majority of my time doing now as my practical abilities have started to decline
. In that respect, they have been more than compensated for the skills that I have lost and feel more than happy and rewarded for working in this medium now. Still, really I was sincere it is probably down to my determination not to give in to Parkinson's and not feel as if there was nothing else that I was capable of doing, which is something that I would never do.